Goals and Purpose

PEP’s goals and purpose are to:

–To provide outcomes-focused multi-dimensional platform designed to improve the therapeutic relationship between parent, child and treatment center staff

–To increase parent’s understanding of their child’s bleeding disorder

–To heighten parental knowledge, coping, and skills in response to addressing bleeding episodes

–To reduce isolation and increase support

–To provide parents skills to age-appropriately empower their child from the earliest age possible to become an independent, capable, confident, productive adult